Tell us how RDFF can lend you a helping hand.

We know how stressful treatment days can be.  The hours spent at the hospital for treatment can wear you down.  Sometimes just a touch of “normalcy” can go a long way to lift your spirits. We want to offer an helping hand to support all you are going through.

We truly cannot wait to meet your family and introduce you to ours. If you have a child or young adult with a rare disease, we invite you to fill out our Family Form. This form is chance for you to tell us anything you want us to know about your child’s diagnosis, your family and how RDFF can best support you. Once you submit your form to us, we will follow up with you via email to schedule a phone meeting with our Co-Founder, Alex Powell. We are so excited for you to join our family!